Dee: I have data on my phone so use that when internet is out. Only emergency use, but keeping sane is an emergency.
An example of how badly my brain works: I watered the garbage this morning. I was watering the inside plants and took some dead leaves off of the plants in the office. On my way to the living room, I stopped into the kitchen, stepped on the garbage can pedal, opened the lid, tossed in the leaves from my right hand and then poured water from the watering can in my left.
I'd be rushing to the doctor for a referral to a neuralogist (words are also missing again and I can't easily do simple arithmetic which makes figuring out when my next dose of medicine is due much harder than it should be) but I still have a fever and pain and both those are going to mess with my cognitive ability as well as the PCS, so I thought I'd at least wait until I'm physically healthy and see if these new problems clear up too. Of course, that means waiting the 3 - 5 weeks for the shingles to stop wearing me down.
Of course, 3 - 5 weeks from now is Christmas and a couple weeks after that is the baby's arrival. So it isn't as if there's nothing on between now and then. And I'll miss most of it as I try to 'not do too much.' We are waiting for ds's Christmas schedule (it will be out today) and then we can plan a pickup day for a pre-cooked Christmas dinner and I can order it.
Dd had already figured out that she'll probably have to host Christmas dinner. On the other hand, she can't do a thing to help so we are debating which is the best choice for a location to eat the meal I'm buying. For now, we'll just work on a date and then plan where when we are closer to the actual day and know how I'm feeling.
I had asked dh not to book the community Christmas party the same weekend as the tree trimming potluck dinner (the only event I have booked that I couldn't cancel.) I wasn't at the meeting when the date was set because I was too sick to attend. I just learned he booked it for the day following the dinner. If that works for the rest of the committee, so be it. I may not be able to go and I certainly won't be able to help host it. I usually need a day or more to recover from a big event and I won't even have 24 hours.
I try to 'not do too much' but it doesn't help if others don't recognize my efforts by supporting my limitations and keep creating 'expectations' for me to do things.
I'm still not dressed for the day. I never had enough energy to actually shower. Then it was lunch time and I was too weak to make a lunch so I went to bed for an hour. I got up, made a frittata (my first) and will try and shower now.